The Boy Whose Skin Fell Off

On September 26th 2003; Jonny Kennedy lost his life to a rare inherited condition known as dystrophic epidermolysis bullosa (EB or DEB). He was born with no skin on his left leg. Kennedy ultimately died of skin cancer caused by EB. The Channel 4 documentary first shown in March 2004 attracted around 5,000,000 viewers and helped raise £500,000 for the EB charity DEBRA. 
Jonny invited Channel 4 to share and document his last four months of his life; Jonny died in his wheelchair, whilst being filmed for the documentary. 
This documentary gives audience a deep and meaning full insight into Jonny's last months....